My son Zain Azrai had convulsions from age six months until he was five years old. He was diagnosed as having tuberous sclerosis, a form of brain tumor with no cure. The epileptic fits stopped when he was five and we stopped giving him his medicine, Epilim.
.......Then about October last year, just after he turned 12, he had a relapse and the doctors decided to open up his skull and do something to his brain. He survived the operation but suffered a coma. He is now bed-ridden, not at home, but at the hospital receiving daily care and treatment. It is now almost six months he has been lying in a hospital bed. He is being fed through a tube and breathes through another tube attached to a hole in his throat. If his lungs get infected, the resultant secretions will have to be sucked out using a suction tube pushed through the hole in his throat. He is of course also wearing diapers.
Last night at 8:30pm we switched off our lights for an hour, being Earthday.
Tonight at 8:30pm I will light a candle on my lanai and shoot off a prayer for Zaharan, Zain and Nina . You too can, yes?